Everyone Knows Someone

(If you’ve been reading my blog recently, you know why this issue is ever-present in my mind.)

I read this comment the other day: “Everyone knows someone who has had cancer.” Someone? As in one? Off the top of my head, I can name ninety people I’ve known personally who have had a cancer diagnosis. Ninety! Not ninety people I’ve heard of. Not celebrities or friends of friends. Ninety people whose hands have touched mine. People I love—family and friends, work colleagues, teachers, childhood play pals or schoolmates, and a few more distant acquaintances.

If I try making a list tomorrow, it will be different. I’ll remember new folks and inadvertently overlook some on today’s list. But today’s list looks like this: breast, 34 (!); prostate, 11; blood, 5; brain, 5; colon, 4; lung, 4, skin, 4; tongue, 2; cervical, 1; and others—those diseases whose names I don’t know or are too complicated to spell out here, 20. (btw, 34 related to me, 17 of them by blood)

And those are just the people I happen to know about (and that my brain recalls). There are friends and relatives I’ve lost contact with. I don’t know their stories. And some people are more private about personal issues. My best friend might have cancer and decided not to share, at least not yet.

Is this—ninety—is this normal? Seventeen blood kin? Is that the way it looks for others? Or am I the only one in touch with so many whose lives have been hijacked by this awful disease?

Now, I know cancer is an inclusive term for more than a hundred so-called different diseases, but they are a family, all identified by abnormal cell growth that spreads and crowds out healthy cells and interferes with necessary body functions and steals nutrients from tissues.

Cancer is a cruel disease, mean, vicious, painful. One whose treatments can be as bad or worse than the disease itself. It doesn’t matter how good you are, how old or young, what gifts you have for the world—cancer doesn’t care.

At least some people with cancer have found unexpected gifts along the way. Some of us know how to do that—to find some good, to learn something valuable, to grow, even in the most difficult of circumstances. But that doesn’t negate the atrocity of the disease itself.

For forty percent of the people on my list, cancer, or complications thereof, was their cause of death—mind you, some of those deaths are from as far back as the 1950s when early detection and advanced treatment technologies we have today simply didn’t exist. Others have almost sailed through treatment and are, at least at the moment, cancer-free. For still others, an uncertain prognosis hangs over them like the sword of Damocles. That sword actually hangs over everyone who has received a cancer diagnosis, whether they’ve been declared ‘cured’ or not, because those potentially deadly cells can hang around, unseen, for years. Every next check-up is a question mark.

People live with that question mark or that sword in different ways, but are rarely, if ever, unaware of it.

The same is true for those who love them.

Stopping for a Hitchhiker

In my Wednesday Writing Workshop one week, we were each asked to select an envelope from the center of the table and instructed not to open it. A few words were scribbled on the front of each envelope. Everyone’s was different. Our instructions: Write a poem, using these words as either the title or the first line. What we didn’t know was that inside our envelopes was a published poem beginning with those same words. We got to read those after we’d written and shared our own work. We only get about five or ten minutes for these little projects. My line was, “Are you going my way?”

Stopping for a Hitchhiker

Are you going my way?
I don’t know where—
we’re adventure bound,
me and my pick-up truck.
Hop on that thar pile of hay.

Are you going my way?
We’ll stop where we choose,
where the wild wind calls
where we’ve never set foot.
Naw, don’t want your pay.

Are you going my way?
We’ll have us a time!
Wonder what’s out there
beyond the beyond.
Come on, go my way.

(Photo attribution: “File:Ramla-trucks-and-transportation-museum-Autocar-2c.jpg” by Bukvoed is licensed under CC BY 4.0)

Three Little Words

(I wrote the following a little more than two years ago, knowing it wasn’t yet time to post it. Now the time has come. It may be a little disjointed since it was more or less stream of consciousness. I thought it better to leave it as it was, only adding an update.)

Three little words. Thirteen letters. Words that will dramatically change your life.

You hope not to hear them. But you have that feeling in your gut. You wait for them.

He has your fate in his hands. Why is he keeping you waiting? Doesn’t he know you’re anxious?

Finally, you hear the light tap on the door before it opens and he walks in.

And there they are. Those three little words. Laid bare.

“You have cancer.”

You’re different now.

Except that you aren’t. The truth was already there. The cancer was already there. You are the same today as you were yesterday. Your fate wasn’t in the doctor’s hands. What he said didn’t change a single fact. It just changed what you know.

Today you know a thing you didn’t know yesterday, or even a moment ago. You suspected it. Maybe you feared it. But you didn’t know it. Yet, it was there.

You have cancer.

You had it yesterday.

You had it last week.

Nothing is different today except that you know it. And you’ll know it tomorrow. And the day after that. And the next day. Forever.

If you hadn’t made that appointment, you wouldn’t know it today, either. But you’d still have it. Nothing can change that truth.

* * * * *

For the few weeks we were waiting for the biopsy and then the results, we made a conscious decision: we weren’t going to worry about it. It either was or wasn’t. Nothing we could do, say, think, or get worked up about would change a thing. We could hope for the best and prepare for the worst, but nothing would change what was. We went on about our daily lives.

And now we know. The question now is what to do about it. Here’s what.

Get informed. Listen to the doc. Take notes; review them. Ask questions. Read the literature. Research.
Get a second opinion or consultation, if we want. (We didn’t. It was pretty straightforward.)
Make a treatment decision.
Tell the family.
Make plans.
Do what it takes: schedule surgery, get radiation, take meds—whatever the regimen is.

But most of all, meanwhile and forever, live life.

You can’t change what is, but you can decide to continue doing what matters. You can make the best of what you have. Cancer may change you. It may not. It may shorten your life or it may not. So may or may not any number of other things. With or without a cancer diagnosis, your decision should be the same: live whatever life you have the best you can. On your own terms.

I’ve heard it said everyone will get cancer if they live long enough. Some people get it sooner, but eventually, if something else doesn’t do you in first, it will be cancer. It is part of life itself. At a certain point, your body starts to turn on you. Metabolism slows. Bones get brittle. Joints creak. Age spots and wrinkles appear. Hair thins. Minds become less elastic, less quick. And maybe your cells get all out of whack. It is all part of the end. The end starts at the beginning.

We won’t forget those three words, those thirteen letters. Certainly not that one, loaded, six letter word. We’ll do what it takes. But we won’t stop living. Tonight we’ll sleep snuggled together (maybe a little closer). Tomorrow we’ll get up, dress, make and eat breakfast, check e-mail, harvest vegetables, mow the grass. We’ll plan our upcoming trip. We’ll laugh.

Cancer is now a part of us. But cancer will not define us. Cancer will not control us.

P.S. The cancer diagnosis was not for my body. It was for his. But it somehow feels the same. At least for me. He agrees, but there’s surely a difference when it’s actually your body. Nonetheless, from the first moment we heard the three word pronouncement, both of us have thought in terms of “we.” The surgery, the treatment, the decisions, the life we lead—they’re ours together. And we aim to make the best of it.

Update: The diagnosis was prostate cancer. For eighteen months after the surgery, there was no evidence any cancer cells remained. Then, just like that, it was back. (If you’re so inclined, you can read Ron’s version of this story and journey here and here.)

The very good news is there is no indication that it has spread beyond the prostate bed, and a combination of hormone and radiation therapy seems like a winning strategy. For now, we’re waiting for the radiation oncologist and his team to complete mapping a therapy plan so radiation treatments can begin.

Off and on, I’ll likely use this blog space to share more thoughts and experiences about how we’re navigating this new territory in our lives. Stay tuned.

Country Living

It’s taken a long time for me to realize it, but I must live in Hooterville. I did love watching Petticoat Junction and Green Acres back in the day. (If you’re too young to understand those references, or if you just feel like a little nostalgic break from reality, click here and here.)

It’s no wonder we landed up here on the diagonal.

But it was only recently that I noticed the signs for the side roads off of the steep, dusty, barely-two-lane road I often take when I’m heading down into the valley a couple of miles away. To give myself credit, there were no green signs to identify them until our county developed its 911 system, but that’s been a long time now, so any credit due me is minuscule.

Indeed, one of those roads is Green Acres Trail. Loafer’s Joy Drive sounds like it would be perfect for Petticoat Junction’s Uncle Joe. Bugtussle Lane is just down the road a piece. And, honest-to-goodness, I drive right by Feuders’ Hill. There’s got to be a story there! The road I’m driving on is no different—Tater Hill. Yep, I’m way out in the country.

Looking into the valley from Tater Hill Road

I like it here. We may not always see eye-to-eye with our neighbors on a few important socio-political issues, but this is the kind of place where an attentive person—and they’re all attentive—will run out in the rain to pick up a package hanging on the arm of our rural mailbox so it won’t get drenched.

And if a strange vehicle turns onto our half-mile, private, gravel drive, someone’s almost sure to follow, insist on learning the driver’s name and business, and proclaim, “We’re all family here [though not quite all of us are], and we watch out for each other.” Fair warning.

It’s a comfort. And you gotta appreciate the history of the place. The folks who live in the two-story frame house down the road a piece include the great-great-great grandchildren of the ones who built it. Imagine that—a six-generation farm!

So, yes, most folks around these parts are family. But not us; we’re the interlopers—we’ve only lived here forty years. It may have taken a long time, but knowing a neighbor includes us in the informal neighborhood watch creates the kind of reassurance that only comes where folks grow their own vegetables and still hang their wash on the line.

It’s home.

Holy Words

Lately, I’ve found myself deeply touched by the words of others. Yes, mere words have lifted me up and given me new hope. There is something of the holy* in their wisdom. (*Etymology lesson of the day: the English word ‘holy’ comes from the Old English word hālig, meaning “whole” as in sound, healthy, complete.Wise words, coming from lessons well-learned, have the potential to make us whole. 

My young friend Emma recently had the opportunity to immerse herself in the life and culture of the Philippines. She came away with this insight: “I am beyond grateful for my life and being able to have the opportunity to come and visit this amazing country, where they are grateful every night for simple things such as a glass of water.”

A cousin who recently suffered a stroke and has a long recovery road ahead of him is taking on the challenge with great determination. He reminds us that “the simplest tasks are the hardest;” he takes pride in every inch of progress including his first day moving to and from his wheelchair with no falls, noting, “You have to learn to appreciate the simple things in life . . . and be glad to have lived through yet another day!!!” He has the saving grace of a sense of humor. After the hard work of putting on and tying his shoes, he realized he’d gotten them on the wrong feet. “You have to learn to laugh a lot,” he said. 

A special friend living with a serious illness said something along these lines: “There have been unexpected blessings on this journey,” as she expounded on the kindnesses of others and a hyperawareness of beauty and truth.

Each of these perceptive people has learned big lessons. Each is a little different, and each one is important. May we all be blessed with the empathy to see and appreciate the daily struggles of others. May we all develop the ability to look around us and honor the unearned bounty that surrounds us. May we learn to laugh at ourselves and to honor our baby steps; they have the potential to turn into giant leaps. And may we recognize and be strengthened by the blessings bestowed by good people, be they professionals, family, neighbors, or strangers.

Whether we want to believe it or not, there is a whole heck of a lot we can’t control in life. But we can learn from it. These inspiring people in my life have learned important life lessons, and they inherently understand the value of passing them on. May we be good students of them and their kind. Be whole.

Good Vibrations!

(Date stamp: late afternoon, August 3, 2019)

The Gnome and I don’t do all that much entertaining up here on the diagonal. That’s partly choice and partly circumstance. It’s funny, because as we were planning our open design floor plan all those years ago, we pictured lots of people milling about and even imagined having only giant floor pillows for seating so they could easily be shoved out of the way for more milling or even dancing.

I don’t know why we thought we’d be party-givers here—we hadn’t hosted many get-togethers back in Kentucky, either, though those few we did were always fun, whether is was sharing an evening of the Mille Bornes card game (with my French teacher colleague, of course) or hosting a Thanksgiving potluck with almost more people than could fit into our small suburban tract home.

Perhaps we had visions of showing off the fruits of our hand-building labor, but that was before the hustle-bustle of gymnastic lessons and competitions, track meets, and cross-country races. And it was before we realized we’d be living in a construction zone for years to come.

The way our forever home looked when we moved in–horizontal girts make perfect narrow shelves in our designated kitchen space.

But today was one of our rare company occasions. It was an almost-last-minute, spur-of-the-moment event, which probably made our day all the more enjoyable. We just relaxed our way into it. Our guests included my college roommate, Jan, and her spouse. The four of us had shared several outings in our college days, but decades intervened before we found our way back to each other. Only three visits in the last couple of years, each one making us wonder why we wait so long.

The other couple we’d never met.

For a couple of introverts, that’s the kind of thing that could create a pile of anxiety. But Lyn and I serendipitously and inadvertently had gotten to know each other rather well on social media—through Jan. (They are in-laws.) We became instant pals, each intrigued by the other’s life experience and appreciative of our common values. With Jan’s help, we’ve been trying to get together for a while, so today was a very big day.

Lyn has been eager to see what our ‘modern homesteading’ life is all about. If she was disappointed to learn that we keep no animals and that our garden is at rest this year, she didn’t show it. Instead, she—and all our guests—wanted to know how and why we up and left a familiar life and tried our hands at hand-building a home in a strange place, pretty much away from everything.

Working from the second story

Well, they got answers—and how! The thing is, since the Gnome and I are sort of on the reclusive side, we don’t get a lot of opportunities to talk about this life we’ve chosen and the experiences we had living in a tent and then a barely less flimsy structure while clearing our land, leveling a hillside, and wielding hammer and saw as we also raised our family.

Our first ‘home’ on the diagonal

Oh, we were in our element, talking about those early days. Retelling our story today brought back so many memories—funny, daunting, and sometimes scary. It reminded us just how proud we are of the home and life we’ve built in this little slice of paradise. There are lots of other reasons our visit today was so special, but revisiting our early days on the diagonal warmed our souls.

So, thank you Lyn and Jan and Bob and Jim for rekindling old memories. I can guarantee we’ll go to sleep tonight with big smiles on our faces.

Friends, old and new

Those Lazy-Hazy-Crazy Days of Summer

They call them the dog days of summer, these days of July and August, usually the hottest and most humid of the year (for those of us in the northern hemisphere). But I can already feel fall. The air has grown slightly less moist, hinting at autumn’s dry coolness, even when the thermometer doesn’t agree.

I hear it in the sounds of insects—different from early summer bug buzzes and chirps. And I hear the occasional thump when a premature nut hits the ground.

I see it in the trees. Their leaves grow simultaneously darker and paler, and occasional ones waft to the ground. I see it in the flowers, too, whose colors have changed from bright summery hues to the softer mauves, lavenders, and golds of fall.

Yes, we may still officially be in summer’s dog days, but fall is in the air. There’s something slightly wistful about these times when the old begins to fade and the new is just beyond the horizon. We become nostalgic for something not yet gone. While some of us bemoan the loss of barefoot days, summer picnics, tubing down a river, others are perking up at the prospect of football, fall foliage, apple cider, and hayrides.

By the way, do you know where the term ‘dog days of summer’ comes from? I always thought it had to do with the way lethargic dogs laze on country roads or under porches during our annual heat waves. I guess in a roundabout way that’s not far off. In fact, the ancient Romans called the hottest, most humid days of summer ‘dog days’ because they associated them with the star Sirius, the dog star. Our most sultry days coincide, more or less, with the time each year when Sirius, the brightest star in the night sky, appears to rise just before the sun.

At this time in my life, the change of seasons brings a question to mind. It looms larger with each cycle—what changes lie in store with the next season? But, whatever is in my own future, my head knows that each season brings its own gifts. My challenge is to embrace them while they are here in all their fullness and, when the time comes, to let them go lightly so I can do the same when the next one rolls around.